A toddler, Paisley Morrison-Johnson, who suffered from a rare condition
which made her tongue to grow more than twice the size of her mouth has
had a surgical procedure to correct the condition, and for the first
time smiled after the surgery.
The condition was so bad that even after surgeons cut away some part of the tongue, it still grew back and covered her mouth.
Doctors diagnosed Paisley as being born with Beckwith Wiedemann
Syndrome (BWS) – an overgrowth disorder that affects one in every 11,000
Because of Little Paisley’s bad condition, she needed a breathing
apparatus for the first week of her life to stop her from choking to
death. and ad to be fed with a gastronomy-tube until she was
six-months-old – because she couldn’t eat normally and needed vital
nutrients to keep her alive.
Her parents Madison Kienow, 21, and Shannon Morrison-Johnson, 23, from
Aberdeen in South Dakota, USA, paid for her second tongue reduction
surgery which had more than six inches of muscle removed after hoping in
vain that their daughter’s mouth would grow to accommodate her
overgrown tongue .
Madison, a student, said:
“Her tongue filled up her whole mouth, it was very thick and protruding
out of her mouth. It looked she had an adult’s size tongue inside the
mouth of a baby. Her tongue was constantly sticking out, she was always
chewing on her tongue because it took up so much room in her mouth.
When she was born, it was so enlarged that doctors worried it was going
to affect her airways and cause her to suffocate. Doctors told us she
had one of the largest tongues they had ever seen and that the sooner
she had reduction surgery the better. But after her first surgery it
looked like her tongue had grown back to its original size and was
really bothering us. During her second reduction surgery a massive
amount of her tongue was removed and thankfully now it goes completely
into her mouth.
Since recovering she smiled for the very first time, I couldn’t believe
it and was shocked by how beautiful my little girl looked. Being able to
see her smile is absolutely huge for us and now she’s not even having
difficulties eating which is a massive relief. She’s like a completely
new baby – her facial features look different, she smiles a lot and she
has even getting close to saying her first words. She couldn’t even make
the sounds to say words like ‘mama’ and ‘dada’ before because of the
size of her tongue so this feels like a massive achievement.”
Because her tongue protruded out of her mouth and constantly stuck out
it always looked like she was making silly faces. Quite often, strangers
would stare at her and some would make comments. They would always ask
me why she looked so different and why she had such a huge tongue.”